Event to raise awareness for hydrocephalus | TahoeDailyTribune.com

Event to raise awareness for hydrocephalus

An inaugural event on Sunday, Sept. 9, aims to raise awareness of a little-known condition affecting more than 1 million Americans, including one young South Lake Tahoe boy.

Reef Woldt was born nine weeks early, on June 17, 2016. He was transferred from Barton Memorial Hospital to UC Davis Children's Hospital where he and his parents spent the next 62 days, according to a press release. Among other complications, Reef developed hydrocephalus: an abnormal build-up of spinal fluid in the brain's ventricles, which enlarges the head and sometimes causes brain damage.

The only treatment for hydrocephalus is brain surgery, primarily with the use of shunts — a method that comes with a high rate of failure. Reef had his first shunt placed on July 13, 2016, and before he was 17 months old, he experienced five malfunctions, all requiring brain surgery, and ultimately the addition of another shunt, according to his parents.

In addition to raising awareness, the inaugural Reef's Run will raise money for charities actively searching for a cure.

The run starts at the shoreline of Tahoe on Kahle Drive, and ends at Round Hill Pines Resort. Costumes— in hydrocephalus blue — are encouraged for all participants on this 2.5-mile fun run/walk.

Partnership opportunities are available and donations for the silent auction are greatly appreciated. Volunteers are also needed to help the day of the event.

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Any direct cash/check donations will be accepted through the Tahoe Douglas Rotary Foundation

For questions contact Sarah Woldt or Kimberly Riddle at Reefsrun@gmail.com